I had my feelings hurt very badly this evening. I have to remember that people who are healthy don't understand what i'm going through and don't know what to say. However when stupidity comes from those you trust or even family it hurts a little bit more.
I've been taking a new medication, it makes me very sick to my stomach. When i get to the point i start to feel better its time to take another dose. This shouldn't last for to long. My body should adjust quite easily after a few more days, i hope :)
Any way, I was speaking with a family member, and they were asking how i was feeling, and i told them the truth out of trust. They asked me what i even had. I explained to them Lupus. Their reply was, Lupus isn't a real thing. The doctor should have just diagnosed you with stupiditis. I'm sure the family member was joking with me. However it hurt. People honestly don't know enough about lupus. All they know is from what they see on sienfield or House. Hopefully one day lupus will be more understood until then, i guess we fighters just have to hop over these negative comments.
This is my first blog. I wanted to go into detail about my story and my life living with lupus, but this was something i had to get off of my chest, it really stung. I don't want to dwell on this conversation when i lay down so i had to vent. i'm still working on my site.
Lupus is definitely real. Just remember most people say stupid things out of ignorance. They don't want to you to know that they really don't understand so they will instead project their stupid comments back on you in way to put you down to build up their low self-esteem.
ReplyDeleteYou are an amazing woman. Try not to let this get you down for too long. One of my favorite quotes is, "Don't waste $1000 worth of energy on a $0.05 irritation."
Keep that beautiful chin up and tell whoever said this to you that, if Lupus wasn't real, then there are about 1.5 MILLION people in America that have been misdiagnosed.