Tuesday, June 7, 2011

Always Starting Over

I believe this is something else that is incredibly hard about dealing
with lupus. Each month after a flare I have to literally start my
progress over again.

My symptoms of lupus start to flare a week before my monthly period.
Lupus puts ne in bed the day I start. Once I've started my flare
ends. But the recovery time does not. It usually takes me a week
after a flare to recover sometimes nearly two weeks.

If I had been walking 2 miles a day before a flare then when a flare
hits I can barely walk until the flare ends. Once it ends and I have
to recover which means lots of rest. Once i feel good again I have to
start all over again walking...taking it easy so I don't lapse into
another self induced flare.

Its very frustrating and can get discouraging. That is why im looking
for a treatment that will work for me. Finding the right combination
of medications is another bad part about having a disease no one knows
much about. When I find the right combinations of medications I will
have more and more good days. I wont have to restart my life every
month. And maybe one day I wont ever have to start over ever again
unless it was on MY terms.

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