Today i was not as nervous as i normally am... i was actually calm... after meeting my amazing urologist...and my ob Doctor recently IBM now aware that there really are amazing doctors out there who want to make us feel good. I now have the confidence to say I'm sorry you aren't the right doctor for me... to not settle for a six month waiting period...
I tend to judge a doctor by their staff... its the first impression i have of the doctor... today... the nurse said i see you are here as a Lupus referral patient.. I'm sorry to hear that.... How are you feeling today? she said this with sincerity... and us lupies...we know this phrase... its the one true phrase that makes us know...a person cares...someone who understands our up days and down days.... I instantly knew this was my time.... 
She didn't ask me the same ol' why are you here... what's going on routine... she already knew... She took my vitals, and we had a nice chat about family history... and she told me... Please don't judge Dr. Scheu with his appearance... he looks very young for his age but i promise he will fix you... I thought how could i have any room to judge how someone looks... I'm 25 but feel 99.
In walks a small built attractive baby faced Dr. Jeremy Schue.
with in two minutes of talking to me he said you have The most typical form of Chronic cutaneous lupus (meaning)
(discoid lupus) appears as
disk-shaped, round lesions. The sores usually appear on your scalp and face, but
sometimes they will occur on other parts of your body as well. Approximately 10
percent of people with discoid lupus later develop systemic lupus, but these
people probably had systemic lupus to begin with, with the skin rash as the
first symptom.
disk-shaped, round lesions. The sores usually appear on your scalp and face, but
sometimes they will occur on other parts of your body as well. Approximately 10
percent of people with discoid lupus later develop systemic lupus, but these
people probably had systemic lupus to begin with, with the skin rash as the
first symptom.
He also said that i have Trochanteric bursitis
which looks to him like this
but to me feels like this....
I also have inflammation in the linning of my chest wall that causes severe pain with each breath i take...however that is being controled with medication...
Then came the test that made me cry....
I knew i had fibromyalgia... however My previous doctor didn't feel the need to treat it. As dr. Schue was moving my joints he decided to press a spot on my forearm that made me scream out in pain! I couldn't even focus because the pain was so severe... i was sweating...and went instantly hot/cold... horrible... He said i had a severe case of fibromyalgia... which is a disease where my brain transmits pain differently. Its over sensitive. Because other parts of my body are in too much pain. He felt very sorry that he had to put me in so much pain, he gave me all his kleenex's. i was positively stunned that a simple touch of his thumb could almost paralyze me...
Tonight i am bruised where he pressed each point... and have an awful headache.
I also found out some more intersting things... i'm sorry folks i'll have to continue later, i'm positively wiped out.... but know... he has a new medication for me, one that he hopes will make me feel human again... i had 15 different blood tests today...chest xray.... and urine... i have a follow up in two months... he said that's how often i will have to come see him to watch my inflammations... also i will be starting steroid injections for my hip! he said i'm going to be human again!!! folks... that's just plum amazing....
Thank you Beverly Knaup....Thank you.... Dr. Jeremy Schue... and thank you for each one of you who take the time to read..and follow up on me... and send your amazing thoughts and prayers.... i appreciate them... so very...much.
God is good. So happy he answered some prayers for you.
ReplyDeleteNow prayers for healing and cures! Maybe this visit with new
Doctor will rejuvinate you:) Lots of love to you.