Believe it or not I hear this a lot from people who don't comprehend my diagnosis of lupus.... well its not like its cancer....
No its not...cancer can be treated and odds are you have a heavy artillary to fight the horrible disease.... having family members struck by cancer and watching their battles does not look like a walk in the lark...at all..but they have hope. Hope is something I just have to have faith in. Hope for a better day...
Another comment I've heard .... well at least its not something more serious!... ya your right...organs shutting down doesn't sound very dire to me either.
My favorite...well ill trade you I have MS. God that's horrible...no I wouldn't want MS but my diease doesn't have its perks or good days either.... the sheer pain I feel in my left arm would astound all you "optimistic" people.
I get frustrated when our disease is not takin serious. Could it be worse?? Ohh you betcha... lupus means im more susceptible to lymph node cancers, complete and total rhenal failure, bladder cancers and failure, lung diease, liver failure....these are all very real things that I may not have to face today....but its a very very real possibility for me in the future...
I sure count my blessings when I see others worse off then me. Trust me I pray to the gods every day when I only have to take seven pills a day verses twenty....but when someone tells you a diagnosis... don't ever say it could be this....
Because the day they decided to tell you...was probably a day they could barely get out of bed...that goes for any diease. When some one tells you their diagnosis...you don't have to try and make it an optimistic spin...or a moment to say sorry...simply ask are you feeling well latley? It means a lot to people who have a chronic sickness...
If I knew that I had to walk through hell like they say chemo is like...and trust me I've seen my share of cancer fighters...if I knew like them they had a fighting chance to beat a disease for good it would be worth the hell....because I live in this hell every day...I just choose to smile.
I respect each one of you who have to fight.something wether it be an addiction...autoimmune disease....ocd... cancer...downsyndromes...parkinsons...fredicks disease...infertility....we are all fighting something in one way or another....
We just have to remeber each one is different. Moons wants to trade places with anyone...but we should for sure conciously think about how the other person feels about their diagnosis.
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